Super sweet....but a little mischevious!

Would you believe it if I told you Lincoln has really come a long way?? It's been two weeks since his surgery. Originally they were tapping twice a day at 14 ml's per time. They found that was really helping then they decided it was helping a little too much. They ended up tapping twice a day at 7.5 ml's per time. That also seemed to help, but just a tad too much. The next step was to tap only once a day at 14 ml's per time. NOW they're tapping only once every other day 14 ml's per time!! They did a head ultra sound the following Tuesday after his surgery and discovered his ventricles were decreased in size. They just did another head ultrasound on Monday and the ventricles have decreased even more. The nurse practitioner who was in charge of him last night said she could see a vast improvement not only in his ventricles but his physical state as well.



So many things to be grateful for, but I can't help to think how I would love to have him home or even at the hospital here in town. Hopefully we'll get him back to the hospital here sooner than later....that is a work in progress. He is improving so much though....he has had very few apnea spells. I held him yesterday and it was the first time in just about three weeks that all of his vitals were extremely stable the whole time! He's now weighing in at 3 lb's 9 oz's and is 17.25 inches long. The occupational therapist came by to see him yesterday and he was the most awake he had ever been. She assessed his situation and had nothing but GOOD things to say about his current condition. The nurse from the night before last informed us that when they drew blood for a few tests he wailed and wailed. She could hear his crying through his isolette! The loudest cry we've ever heard out of him was when he was first born. Since then we've only heard but a few peeps. Call me a mean mom, but knowing he can cry and did was extremely exhilarating for me!



In other news.....he fits right in with the other kids. He's super sweet, but a little mischevious. The nurses have had to put mittens on his hands because he keeps pulling out his feeding tube and nasal cannula!