We still have our occupational therapist, vision specialist, and nurse coming every month for check ups. The OT say he's doing really well and everything that is expected of him. The nurse feels the same way. In fact, the last time she came he had gained 10 ounces in less than two weeks and she was SUPER excited about that. The vision specialist feels Lincoln is on track as well. But when we went to the neonatal follow up clinic, the opthamolgist observed that Lincoln definetely had an injury from either the brain bleed, hydrocephalus, infection from the shunt, or the actual pressure. He diagnosed him with Cortical Visual Impairment. Now, how severe is it? We don't know yet. We do know he can see though. The opthamolgist said just the fact that he makes eye contact and tracks things is HUGE. He diagnosed him with having 20/200 vision or worse, which is considered being legally blind. I think we'll know and see the bigger picture when Lincoln can communicate with us what he is seeing. So for now, we'll just keep hoping for the best and trying to teach him the best ways possible to learn to see!
Can't wait to see him running around in these one day!
Oh, what a cutie/sweetie/love.
ReplyDeleteHave you considered seeing a private optho? We saw Dr. Larsen in Orem (he's FANTASTIC) and we never saw the guys at the neonatal clinic. I saw enough of them at Primary's and the one that comes the most often to clinic (Freis maybe?) is so abrasive... Dr. Larsen only comes to Utah County a few times a month, but we just love him. I don't remember how we hooked up with him. I think our pediatrician recommended we see an optho and he gave us Dr. Larsen's number. Because we were under care with him, we never saw the clinic eye guys. If you do choose to see a private guy, DO NOT UNDER ANY CIRCUMSTANCES pay a visit to Dr. Michael Abrams.